55 Avsnitt

  1. Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

    Publicerades: 2018-04-12

  2. Want to be involved in the Ataxian PROM?

    Publicerades: 2018-04-11

  3. Cindy DeMint support Group leader making a different

    Publicerades: 2018-04-09

  4. Joel Sutherland with DYK

    Publicerades: 2018-04-08

  5. Megan Kaiser discovering latest research.

    Publicerades: 2018-04-06

  6. Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC

    Publicerades: 2018-04-05

  7. Tips for first time attendees to the Ataxia Conference

    Publicerades: 2018-03-23

  8. Keeping a Medical Binder

    Publicerades: 2018-03-11

  9. Ataxia Suport Groups They get me !

    Publicerades: 2018-03-02

  10. Did You Know Suport Groups are extended family and friends

    Publicerades: 2017-11-23

  11. Did You Know about research

    Publicerades: 2017-11-23

  12. Did You Know ? National Ataxia Foundation believes that this type

    Publicerades: 2017-11-16

  13. Did You Know? invisible aspects of Ataxia

    Publicerades: 2017-09-20

  14. Did You Know ? Annual Ataxia Conference (005)

    Publicerades: 2017-09-12

  15. Did You Know Podcast - Episode One

    Publicerades: 2017-08-31

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Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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